Tuesday, December 27, 2011

Having another good moment . . .

so I am content.  Have stopped antibiotics regimen.  Never was fighting any infection.  Doctors now think that I have "tumor fever".  Still have the high temperature, but learning how to "manage them" before they get too high.  I am miserable & in pain until the fever breaks, but doctors tell me it is "good pain" because it means that the chemo drugs are still destroying the cancer cells.  Doctors are pleased that I am having a "robust response" to the treatments.  Apparently, my body is "taking the scenic route" & is still working even though the doctors thought the chemo cycle was completed several weeks ago.  (smile)  Still experience severe fatigue, but not as frequent now.  I was unprepared for that side effect, although the liver doctor warned me about it.  I just thought "come on - how much more tired can I possibly get?!"  Obviously, I was wrong.  Here is an example of my "athletic ability" right now.  I am so tired after peeling a grapefruit that I have to take a 4 hour nap before I can eat it.  Then I nap again after eating it.   I see the medical oncologist this Friday to see when we start the systemic chemo treatment again.  Hope that you & your families have a peaceful and healthy 2012!  Please take care. 

Tuesday, December 20, 2011

An Update

I am very weak now so I will make this short since many of you are concerned that you haven't seen an updates.  Since the last blog, I have been throwing up & became very dehydrated.  After fixing that, I started to and continue to have unexplained high fevers.  They have taken numerous tubes of blood for culture tests, tested for airborne infections, and took my blood and separated the red from the white blood cells and attached a "tracer" on the white blood cells to see what they were attacking.  My immune system is on overdrive & is attacking my body.  All tests came back negative for any infection, but I continue to have the high fevers.  I am now on 2 very strong antibiotics & anti-inflammatory drugs.  I was almost admitted to the hospital twice this month - one for the high fever and last Friday for having half the amount of red blood cells of a normal person.  I received another blood infusion yesterday, but am still weak and tired.  Good news is that the tumor marker dropped from 179 to 141, the liver chemo killed most of the large cancer cells, and my hair is growing back!  My chemo treatment for this month is on hold due to the fact that my condition is unstable.  Doctor checks me every week.  Basically, both doctors and nurses say that I look horrible.  Will keep you posted.  Tired now.  Good night.